Bryan Gould

Bryan spent 30 years in the healthcare industry, 14 of which were in service management within the NHS and private healthcare service support, managing numerous engineering teams across England and Wales. There was a 9 month period where he managed a call centre in Reigate.

Bryan has was diagnosed with a rare, late onset muscular dystrophy (Oculopharyngeal). Several members of his family had / have the condition, including his sister, and due to this he became actively involved as a campaigner with Muscular Dystrophy UK in 2013.

Bryan was voted MDUK Campaigner of the year in 2016 and is a member of their Content Advisory Group and a Peer Support Volunteer. He also has the role of Co-Chair of the West Midlands Neuromuscular Clinical Network and has spoken at GP Education, Care Advisor and Respiratory Study events.

As part of the #RightToBreathe campaign Bryan has actively participated in meetings with health ministers at Westminster and supported Cough Assist equipment commissioning debates and strategies. On top of this Bryan has also worked with a local CCG, GP and End of Life Palliative Care Consultant on a GP Neuromuscular Pathway.

As part of a local Neurological Alliance and passionate about better access to coordinated healthcare for those with complex needs - this issue is important to him as his wife has Multiple Sclerosis (MS). He has dedicated his time for numerous neurological charities and been actively involved in the staging of several large neurological healthcare events. He dedicated his time to attend the Dudley neurology and end of life palliative care strategy group meetings. In addition, as a Patient Public Volunteer he supported the NHS England New Care Models Vanguard Programme and in more recent years its Elizabeth Garett Anderson and Nye Bevan Leadership Programmes.

Since 2017 Bryan has been involved with the MDSC, where his many roles and experience have had a huge impact. He is also a service user, where he benefits enormously from the specialised neuromuscular physical therapies on offer.